Caring with someone with cardiomyopathy, or living with the condition yourself, can be challenging. As information about cardiomyopathy continually evolves, we strive to keep you informed of the latest developments. To share your experiences and connect with others in your community, join our official private Facebook group - click here.
CMANZ aims to provide people impacted by Cardiomyopathy with support, information, and advocacy.
Support
- A contact person who can provide initial information and offer support
- A private Facebook group for sharing experiences and seeking information
- Periodic social and informative meetings
Information
- Types of cardiomyopathies
- Information on genetics
- Newsletters are shared periodically on our website and emailed to our subscribers
- Announcements are shared on our official Facebook page and our socials
Advocacy
- Submissions are made to government enquiries and relevant Government committees such as the Pharmaceutical Benefits Advisory Committee and the Medical Services Advisory Committee
- Committee members perform numerous advocacy activities including attending conferences, sitting on round tables and steering committees, and undertaking consumer engagement activities within health services to ensure cardiomyopathy patients are represented
