Community Voices

Jodie’s Hypertrophic Cardiomyopathy (HCM) story

My Hypertrophic Cardiomyopathy Story Hi, my name is Jodie. I am 35 years old. I am a Disability Support Worker and qualified Teachers Aide. I love my family, volunteering with

Dino’s Dilated Cardiomyopathy (DCM) story

My Journey with Dilated Cardiomyopathy Hi, my name is Dino, and I’m from Adelaide. I’m 51 years old, and was diagnosed with Idiopathic Dilated Cardiomyopathy in 2024. This is my

Leo’s Amyloid Cardiomyopathy (ATTR-CM) story

Leo’s Story – Living with ATTR Wild-Type Amyloidosis Hi, my name is Leo and I am living with ATTR wild-type amyloidosis. It is a rare disease where abnormal proteins called

Jessie’s Hypertrophic Cardiomyopathy (HCM) story

Hello! My name is Jessie and I have hypertrophic cardiomyopathy. What led to your diagnosis? What has happened since then? Growing up, I was very active and played a lot

Miranda’s Dilated cardiomyopathy (DCM) story

I was 21 when I was diagnosed with Dilated Cardiomyopathy DCM. I was breathless, was putting in fluid weight, and was struggling to walk in a flat surface. My father

Mel’s Takotsubo cardiomyopathy story

Takotsubo Cardiomyopathy often begins with an intense emotional event but I call my experience ‘a perfect storm’. I was a single mum, working full time from home, managing an extreme

Chloe’s Hypertrophic Cardiomyopathy (HCM) story

My name is Chloe, I am a 38-year-old mum, wife, step-mum, aunty, dog mum, and small business owner. When I was 27, I was diagnosed with Hypertrophic Cardiomyopathy (HCM –

Dianne’s Dilated Cardiomyopathy (DCM) story

Hello. My name is Dianne, and I live in Ipswich, Queensland. I was diagnosed with Idiopathic Left Ventricular Cardiomyopathy in 2018. What led to your diagnosis? What has happened since

Ray’s Dilated Cardiomyopathy (DCM) story

Hi I’m Ray. I was diagnosed with Dilated Cardiomyopathy in 2008, aged 66. My wife and I have two children and 4 grandchildren, and for years, with our son, we

Sue’s Dilated Cardiomyopathy (DCM) story

My name is Sue, I am 76 and have one daughter and 3 grandchildren. I was diagnosed with dilated cardiomyopathy and heart failure 3 years ago. What led to your