Community Voices
Jodie’s Hypertrophic Cardiomyopathy (HCM) story
My Hypertrophic Cardiomyopathy Story Hi, my name is Jodie. I am 35 years old. I am a Disability Support Worker and qualified Teachers Aide. I love my family, volunteering with
Dino’s Dilated Cardiomyopathy (DCM) story
My Journey with Dilated Cardiomyopathy Hi, my name is Dino, and I’m from Adelaide. I’m 51 years old, and was diagnosed with Idiopathic Dilated Cardiomyopathy in 2024. This is my
Leo’s Amyloid Cardiomyopathy (ATTR-CM) story
Leo’s Story – Living with ATTR Wild-Type Amyloidosis Hi, my name is Leo and I am living with ATTR wild-type amyloidosis. It is a rare disease where abnormal proteins called
Jessie’s Hypertrophic Cardiomyopathy (HCM) story
Hello! My name is Jessie and I have hypertrophic cardiomyopathy. What led to your diagnosis? What has happened since then? Growing up, I was very active and played a lot
Miranda’s Dilated cardiomyopathy (DCM) story
I was 21 when I was diagnosed with Dilated Cardiomyopathy DCM. I was breathless, was putting in fluid weight, and was struggling to walk in a flat surface. My father
Mel’s Takotsubo cardiomyopathy story
Takotsubo Cardiomyopathy often begins with an intense emotional event but I call my experience ‘a perfect storm’. I was a single mum, working full time from home, managing an extreme
Chloe’s Hypertrophic Cardiomyopathy (HCM) story
My name is Chloe, I am a 38-year-old mum, wife, step-mum, aunty, dog mum, and small business owner. When I was 27, I was diagnosed with Hypertrophic Cardiomyopathy (HCM –
Dianne’s Dilated Cardiomyopathy (DCM) story
Hello. My name is Dianne, and I live in Ipswich, Queensland. I was diagnosed with Idiopathic Left Ventricular Cardiomyopathy in 2018. What led to your diagnosis? What has happened since
Ray’s Dilated Cardiomyopathy (DCM) story
Hi I’m Ray. I was diagnosed with Dilated Cardiomyopathy in 2008, aged 66. My wife and I have two children and 4 grandchildren, and for years, with our son, we
Sue’s Dilated Cardiomyopathy (DCM) story
My name is Sue, I am 76 and have one daughter and 3 grandchildren. I was diagnosed with dilated cardiomyopathy and heart failure 3 years ago. What led to your